Monday, March 20, 2017

Happy World Down Syndrome Day 2017



It's been almost two years since I've written a blog post. In looking back, I wrote 579 over the first five years of Cooper's life. It was good for me and I got a lot of feedback that the writing was helpful to others. After Kensi was born I took a break. Two kids really IS a game changer! 

You'll notice the 579 posts are no longer live on this blog. Some time a year or so ago I read an article written by an adult with a disability and it made me realize that in some ways I had confused Cooper's story and my own. In my effort to share our journey for the greater good, I realized (in some cases) I was telling a story that is his to tell. So for the time being I took all the blog posts and reverted them to draft mode. 

The other part of my hiatus had to do with the fact that we also moved to Maryland, which was no small feet with new jobs, a new home, new therapists and doctors, a new church, and new friends. Now that the dust has settled (as much as it can with a 7 and 2 year old) I'd like to revisit my old writing and find my voice to tell my story.

We'll see where it goes. Stay tuned!

In the meantime, Happy World Down Syndrome Day! The day is observed on March 21 every year as a global awareness day. It has been officially observed by the United Nations since 2012.

As we celebrate, whether you are wearing lots of socks, blue and yellow, or jeans to honor the day, know that your gesture is meaningful. Think about the world fifty years ago or event twenty. It was not today's world of inclusion, acceptance, and growing programs for individuals with disabilities, but rather a world of limitations and low expectations.

Sometimes raising awareness is more important than raising money. Days like today help create a more accepting world.

I am grateful for this journey. It is a blessed one that is mostly filled with joy, but not always an easy one. It has taught me the true value of a support system. I am grateful for a husband who has walked beside on this journey me from day one. I am grateful for family, friends, church family, and colleagues who support us. And I am grateful that God chose our two amazing children for our lives.